‘Disability is not inability’

Hembili on overcoming scoliosis

As the world commemorates World Health Day on 7 April under the theme ‘Healthy Beginnings, Hopeful Futures,’ the spotlight is on enhancing maternal and newborn health.

But for Anna Hembili (29), the theme touches on far more than it was originally meant to – her scoliosis story is one of defiance.

Diagnosed with scoliosis, where the spine twists sideways, Hembili has taken her life struggle as a rallying point for change, inspiring hundreds of individuals to embrace their uniqueness and fight for inclusiveness.

Hembili is a vocational training graduate, a youth leader in various organisations, and currently works as an administrator in the private sector, all while standing up for inclusivity.

Born and raised at Ongwediva, and currently residing at Ondangwa, Hembili told The Namibian on Wednesday that she was diagnosed with scoliosis over 16 years ago.

“Back then, I didn’t really know what it was,” she says.

“But I realised it would shape my life in profound ways.”

OVERCOMING CHALLENGES

Scoliosis introduced daily challenges, from dealing with chronic pain to managing fatigue.

“Carrying heavy books to school or sitting for hours on end was difficult. Even at home, doing simple things was more effort,” she said.

Aside from the physical discomfort, Hembili stated that her sickness also had an effect on her emotionally, because she would often catch herself feeling self-conscious about her posture and the noticeable effect of scoliosis.

“I suffered from low self-esteem and fear of being judged. The uncertainty of how my condition would progress was also a burden,” she said.

Eventually, she became confident about embracing her difference.

“I learned to love myself first, and that was the only way the world will accept me.”

Hembili credited much of her resilience to her supportive network.

“My family are my friends. They always come through, whether it is medicine, warm clothing, or just being there,” she said, adding that her family has been a source of strength, accepting her condition and assisting when needed.

Rather than letting scoliosis constrain her, Hembili said she has chosen to leverage what she knows to empower others.
“Instead of focusing on what I could not do, I chose to highlight what I could.”
Her advocacy extends to other leadership roles, including being a past member of the advisory committee at Nakayale Vocational Training Centre, former secretary of the Namibia Organisation of Youth with Disability, and Namibia National Students Organisation chairperson in her region.

She is also interested in ensuring equal opportunities for people with disabilities.

“I want all the employers to know that even if we are disabled, there is ‘able’ in us,” she urged.

In her work, she actively challenges stereotypes and educates people about accessibility.

“Challenges can be stepping stones to greatness if approached with grit and belief in oneself.”

CHAMPIONING DISABILITY RIGHTS

Her activism is the direct result of the discrimination and inaccessible barriers she herself has encountered.

“I’ve faced instances where my condition was not understood, and accessibility was an issue,” she explained.

But rather than being discouraged, she uses those experiences to drive change.

“I advocate for myself and others, pushing for a society that embraces everyone, regardless of physical ability.”

One of her proudest moments was participating in the ‘Miss Ability’ pageant, which goes against the norm in terms of beauty and highlights the potential of people with disabilities.

RAISING AWARENESS ON SCOLIOSIS

Despite the challenges she has faced, Hembili acknowledges the advances Namibian medical professionals have made in addressing scoliosis.

Windhoek Spine orthopedic spinal surgeon Dr Alex van der Horst has been instrumental in the treatment of spinal disorders, including scoliosis.

Additionally, the Namibian Chiropractic Association, under the leadership of Dr Elga Drews, has been at the forefront of initiatives such as the ‘Straighten Up’ exercise programmes which promote awareness of spinal health.

However, she believes there is still more to be achieved.

“We need more awareness and more programmes that help individuals with scoliosis,” she says.

To those battling scoliosis or any other condition, Hembili has a powerful message: “Your condition does not define you. What truly matters is your attitude and strength. Dear black child, your dreams are real.”

She also urged parents of children with scoliosis to provide unconditional support.

“Obtain the appropriate medical advice and encourage your children to do what they enjoy. Creating an atmosphere of empathy and empowerment is so crucial.”

During her journey, Hembili also wants to collaborate with disability rights groups.

“I want a more accessible Namibia where people with disabilities have equal opportunities as other people,” she said.

Hembili asserts to be a scoliosis warrior, and that she is a symbol of strength, resilience and hope.

“My journey is a reminder that adversity, however great, can be used as an opportunity for empowerment and growth.”